CCMHE is a non-profit organization, 501(c)(3). EIN 900997223.

Mission:  Raise funds for MHE Research.

Purpose:  Eradicate MHE.  Find treatment that stops bone tumors from appearing on children's bodies.

Board Members:   Nathan Bland, Shannon Bland, Rahul Salota, Otilia Gaidos, Guillermo Ortiz Pena.